Gareth Davies

Name: Gareth Davies
Country: France
Degrees: BA (Hons)
Current job title: Executive Director
Institution: European Cleft Organisation (ECO)
Short autobiography:

Gareth Davies has worked as a leader and innovator in the voluntary sector nationally and internationally for most of his career, working in the fields of human rights, homelessness and disadvantaged children. His current interest in developing better practices for the treatment of children born with clefts began in 1995 when he became the first CEO of the UK Cleft Lip and Palate Association. He was a key member of the UK government advisory committee on cleft care, which recommended and subsequently oversaw the development of UK centres of excellence in cleft care, working from a full multidisciplinary perspective. In 2007 he co-founded the European Cleft Organisation which strives to improve the lives of all children born with clefts throughout Europe. The charity has ongoing educational projects in Eastern Europe and is developing a set of agreed, European guidelines on early cleft care with an emphasis on the psychosocial support needs of families and children with clefts. He has a long interest in Eastern Europe having lived and studied in Poland in the 1980s. His motivation for his current work project stems from the fact that he was born with a cleft lip and palate. He currently lives in France, is married and has three grown up children.

Reason for joining: To address issues connected with stigma of visible difference
Current research interest in relation to the COST Action: European agreement on guidelines for the early care and support needs of babies born with clefts and their families
COST Actions Outcomes:
E-mail: davieszak@gmail.com
Link to institution: www.ecoonline.org , www.gateway.ecoonline.org